Each year we divide our masters of public policy students into teams and get them to write case studies of public policy failures. The winning team this year wrote a case study of the care.data fiasco. The UK government collected personal health information on tens of millions of people who had had hospital treatment in England and then sold it off to researchers, drug companies and even marketing firms, with only a token gesture of anonymisation. In practice patients were easy to identify. The resulting scandal stalled plans to centralise GP data as well, at least for a while.
Congratulations to Lizzie Presser, Maia Hruskova, Helen Rowbottom and Jesse Kancir, who tell the story of how mismanagement, conflicts and miscommunication led to a failure of patient privacy on an industrial scale, and discuss the lessons that might be learned. Their case study has just appeared today in Technology Science, a new open-access journal for people studying conflicts that arise between technology and society. LBT readers will recall several posts reporting the problem, but it’s great to have a proper, peer-reviewed case study that we can give to future generations of students. (Incidentally, the previous year’s winning case study was on a related topic, the failure of the NHS National Programme for IT.)