Comments on: Health privacy … breaking news … http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/ Security Research, Computer Laboratory, University of Cambridge Sun, 27 Jul 2008 09:25:41 +0000 http://wordpress.org/?v=2.5.1 By: james percival barlow http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-29176 james percival barlow Sun, 18 May 2008 16:27:03 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-29176 In view of the Government's lamentable {and wasteful record in I.T.attempts} I would not agree to like proposals if offered to my Veterinary Surgeon. In view of the Government’s lamentable
{and wasteful record in I.T.attempts} I would not agree to like proposals if
offered to my Veterinary Surgeon.

]]> By: Ross Anderson http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-29175 Ross Anderson Sun, 18 May 2008 11:34:54 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-29175 It's www.thebigoptout.org It’s http://www.thebigoptout.org

]]> By: Robert Robertson http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-29172 Robert Robertson Sun, 18 May 2008 07:13:49 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-29172 behind you 100%. Glad to see Christopher Booker also backs you on p23 Sunday Telegraph May 18th. He directs us to www.TheBigOptOut but got an error message when I tried to do so. Where else can I get copy of the letter (updated or not)? Last year I notified my GP, who agreed with me but this was before your letter and I want to send that in addition now. Please advise or copy letter to my e-mail address. Thanks. P.S. I know Joanna Lumley is anti ID & probably would support this too. Try & get a copy to her if you have a contact address. behind you 100%. Glad to see Christopher Booker also backs you on p23 Sunday Telegraph May 18th. He directs us to http://www.TheBigOptOut but got an error message when I tried to do so. Where else can I get copy of the letter (updated or not)? Last year I notified my GP, who agreed with me but this was before your letter and I want to send that in addition now. Please advise or copy letter to my e-mail address. Thanks.
P.S. I know Joanna Lumley is anti ID & probably would support this too. Try & get a copy to her if you have a contact address.

]]> By: Dave http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-13697 Dave Sun, 21 Jan 2007 19:20:09 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-13697 The prob with not having much in the record just now is that it might not stay that way. Chances are the doctor will not have the time to read your medical records to get the info. As for owning your own body. There are people such as Tam Fry, the chairman of the Child Growth Foundation that think children should be forced to be weighed for research. In his words: "The Social Care Act says that when there is an urgent need for medical information it can override an individual's right to refuse." If they can force children to d this so they can get their stats, do you think they will care about your data? CfH will have all the info they need. The prob with not having much in the record just now is that it might not stay that way.
Chances are the doctor will not have the time to read your medical records to get the info.
As for owning your own body. There are people such as Tam Fry, the chairman of the Child Growth Foundation that think children should be forced to be weighed for research. In his words:
“The Social Care Act says that when there is an urgent need for medical information it can override an individual’s right to refuse.”
If they can force children to d this so they can get their stats, do you think they will care about your data? CfH will have all the info they need.

]]> By: Peter Gardner http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9551 Peter Gardner Mon, 18 Dec 2006 19:52:39 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9551 My main reason for objecting isn't actually the security issue since I don't have much of a medical record anyway. But I do object to this nanny state telling me that my records should be uploaded because it would be useful for a doctor who NEEDS to treat me. Don't I own my own body anymore? My main reason for objecting isn’t actually the security issue since I don’t have much of a medical record anyway. But I do object to this nanny state telling me that my records should be uploaded because it would be useful for a doctor who NEEDS to treat me. Don’t I own my own body anymore?

]]> By: Light Blue Touchpaper » Health database optout - latest news http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9469 Light Blue Touchpaper » Health database optout - latest news Mon, 18 Dec 2006 10:11:14 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9469 [...] For more, see TheBigOptOut.org, nhs-it.info and my previous blog posts here, here and here, and our work on children’s databases (children’s safety and privacy might be particularly at risk from the proposals, as I explain in the debate). [...] [...] For more, see TheBigOptOut.org, nhs-it.info and my previous blog posts here, here and here, and our work on children’s databases (children’s safety and privacy might be particularly at risk from the proposals, as I explain in the debate). [...]

]]> By: Tom Griffin http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9466 Tom Griffin Mon, 18 Dec 2006 09:57:24 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9466 I fully support those GPs who are concerned at the breach of patient confidentiality that is latent in the government's request to upload patient data. I would like The BMA to stand fast against the government and consider piloting their own alternative medical data portal site for holding essential UK patient data with Google. Essential data being allergies, penicillin resistance, GP's contact details accessible only by medical professionals. Requests for more detailed information have to be made to a patient's GP, Thus ensuring the GP remains the gatekeeper to more sensitive medical data. Yours sincerely Tom Griffin I fully support those GPs who are concerned at the breach of patient confidentiality that is latent in the government’s request to upload patient data.
I would like The BMA to stand fast against the government and consider piloting their own alternative medical data portal site for holding essential UK patient data with Google. Essential data being allergies, penicillin resistance, GP’s contact details accessible only by medical professionals. Requests for more detailed information have to be made to a patient’s GP, Thus ensuring the GP remains the gatekeeper to more sensitive medical data.

Yours sincerely
Tom Griffin

]]> By: Ross Anderson http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9084 Ross Anderson Fri, 15 Dec 2006 19:02:32 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-9084 Here is the <a href="http://www.bcs.org/upload/pdf/BCS-HIF-report.pdf" rel="nofollow">BCS report</a>. Many juicy bits including 'The NPfIT is ultimately intended to provide vastly increased amounts of patient data for secondary purposes, including NHS management, planning and research. So although the associated confidentiality issues have been with us as long as electronic patient data has been available in significant quantities, the requirement to tackle them is now more urgent than ever. People using patient data for secondary purposes should obtain patient consent to use personally identifiable data or should only be able to use anonymised/pseudo-anonymized data' Here is the BCS report. Many juicy bits including ‘The NPfIT is ultimately intended to provide vastly increased amounts of patient data for secondary purposes, including NHS management, planning and research. So although the associated confidentiality issues have been with us as long as electronic patient data has been available in significant quantities, the requirement to tackle them is now more urgent than ever. People using patient data for secondary purposes should obtain patient consent to use personally identifiable data or should only be able to use anonymised/pseudo-anonymized data’

]]> By: Ross Anderson http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-8995 Ross Anderson Fri, 15 Dec 2006 11:14:43 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-8995 The <a href="http://www.telegraph.co.uk/money/main.jhtml?xml=/money/2006/12/15/cnbcs15.xml" rel="nofollow">Telegraph</a> reports criticism from the BCS of CfH (which doesn't seem to have made it to their website yet) The Telegraph reports criticism from the BCS of CfH (which doesn’t seem to have made it to their website yet)

]]> By: Toby Stevens http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-8697 Toby Stevens Wed, 13 Dec 2006 22:34:13 +0000 http://www.lightbluetouchpaper.org/2006/12/01/health-privacy-breaking-news/#comment-8697 My GP - who has always been top notch - has not only added the appropriate Read code to my record, but has responded with a copy of Sir Liam Donaldson's letter with the words "I DIDN'T!" written next to the CMO's instruction to inform him of the request. At least there are still some thinkers out there... :) My GP - who has always been top notch - has not only added the appropriate Read code to my record, but has responded with a copy of Sir Liam Donaldson’s letter with the words “I DIDN’T!” written next to the CMO’s instruction to inform him of the request. At least there are still some thinkers out there… :)

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